Identified common data sources in CP information system and registration networks
Data sources | Reference no | Frequency of records (percentage of 39 included studies) |
Data from clinics | 12 31 38 39 48 52 54 55 59 | 9 (23.07) |
Hospitals | 12 30 34–36 38 39 41 46 51 52 54 59 60 | 14 (35.89) |
Rehabilitation centres and care centres | 30 36 38 46 48 52 54–56 | 9 (23.07) |
Rehabilitation research centres and data from research centres | 12 29 31 34 37 38 48 52 54 55 | 10 (25.64) |
CP associations, charities, and insurance organisations | 12 38 48 51 52 54–56 | 8 (20.51) |
Medical professionals and disability service providers | 12 29 31–34 38 48 52 54 55 | 11 (28.20) |
Birth registry | 29 50–52 54 56 | 6 (15.38) |
Death registry | 29 50–52 54 56 | 6 (15.38) |
Self-reported data | 12 29 31 36 48 50 51 56 | 8 (20.51) |
Patient records (paper-based or electronic records) | 12 26 27 29 30 32 34 38 40 46 53 55 59 60 | 14 (35.89) |
CP, cerebral palsy.