Table 3

Identified common data sources in CP information system and registration networks

Data sourcesReference noFrequency of records (percentage of 39 included studies)
Data from clinics12 31 38 39 48 52 54 55 599 (23.07)
Hospitals12 30 34–36 38 39 41 46 51 52 54 59 6014 (35.89)
Rehabilitation centres and care centres30 36 38 46 48 52 54–569 (23.07)
Rehabilitation research centres and data from research centres12 29 31 34 37 38 48 52 54 5510 (25.64)
CP associations, charities, and insurance organisations12 38 48 51 52 54–568 (20.51)
Medical professionals and disability service providers12 29 31–34 38 48 52 54 5511 (28.20)
Birth registry29 50–52 54 566 (15.38)
Death registry29 50–52 54 566 (15.38)
Self-reported data12 29 31 36 48 50 51 568 (20.51)
Patient records (paper-based or electronic records)12 26 27 29 30 32 34 38 40 46 53 55 59 6014 (35.89)
  • CP, cerebral palsy.