Table 4

The main categories of common data elements in CP registration and information system

Core data category	Data element instances	Reference	Frequency of studies (%)
Demographic data	Sex	1 27 29 31 33 36 38 39 41 48 50 51 53 56 58–61	18 (46.15)
	Age (or date of birth)
	Country of birth
	Mother's date of birth
	Father's date of birth
	Mother's country of birth
	Mother
	Father's country of birth
	Consanguinity biological
	Mother and father
	Race
	Education
	City and country of birth
	City and country of residence
	Contact details
	Date of death
Diagnosis	Birth weight	27 29 31 33 36 39 41 48 50 51 53 54 57 58 60 61	16 (41.02)
	Gestational age
	GMFCS
	Diagnosis/motor type
	Postneonatal cause/timing
	Epilepsy/seizures
	Syndromes/congenital malformations
	MRI
	CP type
	Intellectual function
	Severity of disability
	Type of pregnancy
	Gestational category
	Comorbidities
Motor function	Unable to walk	27 29 33 36 38 41 50 51 53 54 56–58 60 61	15 (38.46)
	Walking limited, with aids Walking restricted but unaided
	Unaided walking
	No functional consequence
Visual impairment	Severe	12 27 29 36 38 41 50 51 53 57 60 61	12 (30.76)
	Mild/moderate
	Normal vision
	Unclassified