Table 2

Data elements required to be submitted in the registry

Data elementDefinition
General and patient demographic data
 Date of submissionDay, month and year of patient registration form filled by his/her MD
 Health unitHospital or health centre of city in which MD works
 Patient health unit ID
 (not visible in data grid views)
Patient’s unique ID within the hospital information system. This ID is stored in the registry and it is converted to an Hellenic Biomedical Registry ID
 Gender – age – cityPatient’s gender (man or woman) – age – city of residence
 BMIPatient’s body mass index
Patient’s health history
 Smoking – alcohol – sportsPatient’s habits
 AllergiesPatient’s known allergies
 Surgeries historyPatient’s surgeries in the past
 Previous clinical trial participation*Declare previous participation in any clinical trial
 Family historyPatient’s family health cases
Patient’s clinical profile
 ICD-10Patient’s disease/condition ICD code
 Physician examinationPatient’s secondary diseases
 Personal medicationPatient’s systemic medication for all his/her conditions
 Ongoing Interventions*Patient’s ongoing anticancer chemotherapy or radiotherapy
 Clinical and radiological examinations*Patient’s last X-rays, CT, MRI, U/S, PET scan (post DICOM Images)
Patient’s molecular/genomic profile
 Molecular pathology resultsPatient’s biopsy and IHC results – upload report – cancer staging
 Molecular diagnostic resultsPatient’s molecular diagnostics results based on his/her disease gene panel tests (mutations, SNPs, microarray analysis)
  • *Data fields with enabled conditional logic for further action.

  • †Genomic mutations or SNPs should follow the Human Genome Variation Society (HGVS) nomenclature, as described on the HGVS website (, last accessed, December 2018).

  • ICD-10, International Classification of Diseases, 10th edition; IHC, immunohistochemistry; PET, positron emission tomography; SNP, single nucleotide polymorphism; U/S, ultrasound.