Pair | Name | Country | URL | Size (N/1000) | Secondary coding system Y/N | Linkage Yes/Pilot/Plan/No | Ethics approval | Contact patients | |||
---|---|---|---|---|---|---|---|---|---|---|---|
Primary care & cancer registry | |||||||||||
1 | CroDiab | Croatia | www.idb.hr/web_english/crodiab.htm | 100–1000 | 2000 | ICD-10 | n/a | No | No | No | |
Croatian Institute for Health Insurance | Croatia | www.hzjz.hr | 1–10 | 2001 | ICD-10 | ICPC-2 | Yes | n/a | yes | ||
2 | Finnish Cancer Registry | Finland | www.cancerregistry.fi | 1000–5000 | 1952 | ICD-0-3 | SNOMED | Yes | ≤3 months | n/a | |
Care Register for Health Care (HILMO) Institutions | Finland | www.stakes.fi | >5000 | 1961 | ICD-10 | ICPC-2 | Yes | ≤3 months | |||
3 | Tumorothèque Régionale de Franche-Comté | France | www.chu-besancon.fr/tumoro | 1–10 | 2005 | ICD-10 | n/a | Pilot | 4–6 months | Yes | |
OMG CONSTANCE GAZEL | France | No | |||||||||
4 | Bremen Cancer Registry | Germany | www.krebsregister.bremen.de | 100–1000 | 1994 | ICD-10 | n/a | Pilot | ≤3 months | Yes | |
CONTENT | Germany | www.content-info.org | 100–1000 | 2005 | ICD-10 | ICPC-2 | Pilot | 4–6 months | Yes | ||
5 | National Cancer Registry | Ireland | www.ncri.ie | n/a | 1994 | ICD-10 | n/a | Pilot | No | Yes | |
GPMED | Ireland | www.icgp.ie | 100–1000 | 2008 | ICPC-2 | n/a | Pilot | ≤3 months | No | ||
6 | Janus Serum Bank, Cancer Registry, Norway | Norway | www.kreftregisteret.no/en/ | 100–1000 | 1951 | ICD-10 | SNOMED (CT&RT) | Yes | ≤3 months | Yes | |
Norwegian Prescription Database | Norway | www.norpd.no | 1000–5000 | 2004 | ICD-10 | ICPC-2 | Yes | n/a | n/a | ||
7 | Spanish DILI Registry | Spain | www.spanishdili.uma.es | 0.1–1 | 1994 | n/a | n/a | Pilot | ≤3 months | No | |
SIDIAP | Spain | n/a | >5000 | 2005 | ICD-10 | n/a | No | ≤3 months | No | ||
8 | Spanish Tumour Bank Network | Spain | www.cnio.es | 100–1000 | 2000 | ICD-10 | n/a | Pilot | ≤3 months | No | |
SIDIAP | Spain | n/a | >5000 | 2005 | ICD-10 | n/a | No | ≤3 months | No | ||
9 | National Cancer Intelligence Network (NCIN) | UK-England | www.ncin.org.uk/home.aspx | >5000 | 1971 | ICD-10 | n/a | Yes | 4-6 months | Yes | |
General Practice Research Database (GPRD) | UK-England | admin{at}gprd.com | >5000 | 1987 | Read Codes | n/a | Yes | ≤3 months | Yes | ||
10 | SCI-DC, Scotland | UK-Scotland | 1000–5000 | 2005 | ICD-10 | Read Codes | Pilot | ≤3 months | Yes | ||
Health Informatics Centre | UK-Scotland | n/a | 100–1000 | 1990 | ICD-10 | SNOMED | Yes | ≤3 months | Yes |