Table 6 The eligible sites for conducting Barrett’s disease TRANSFoRm use-cases
PairNameCountryURLSize (N/1000)Secondary coding system
Y/N
Linkage Yes/Pilot/Plan/NoEthics approvalContact patients
Primary care & cancer registry
1CroDiabCroatiawww.idb.hr/web_english/crodiab.htm100–10002000ICD-10n/aNoNoNo
Croatian Institute for Health InsuranceCroatiawww.hzjz.hr1–102001ICD-10ICPC-2Yesn/ayes
2Finnish Cancer RegistryFinlandwww.cancerregistry.fi1000–50001952ICD-0-3SNOMEDYes≤3 monthsn/a
Care Register for Health Care (HILMO) InstitutionsFinlandwww.stakes.fi>50001961ICD-10ICPC-2Yes≤3 months
3Tumorothèque Régionale de Franche-ComtéFrancewww.chu-besancon.fr/tumoro1–102005ICD-10n/aPilot4–6 monthsYes
OMG CONSTANCE GAZELFranceNo
4Bremen Cancer RegistryGermanywww.krebsregister.bremen.de100–10001994ICD-10n/aPilot≤3 monthsYes
CONTENTGermanywww.content-info.org100–10002005ICD-10ICPC-2Pilot4–6 monthsYes
5National Cancer RegistryIrelandwww.ncri.ien/a1994ICD-10n/aPilotNoYes
GPMEDIrelandwww.icgp.ie100–10002008ICPC-2n/aPilot≤3 monthsNo
6Janus Serum Bank, Cancer Registry, NorwayNorwaywww.kreftregisteret.no/en/100–10001951ICD-10SNOMED (CT&RT)Yes≤3 monthsYes
Norwegian Prescription DatabaseNorwaywww.norpd.no1000–50002004ICD-10ICPC-2Yesn/an/a
7Spanish DILI RegistrySpainwww.spanishdili.uma.es0.1–11994n/an/aPilot≤3 monthsNo
SIDIAPSpainn/a>50002005ICD-10n/aNo≤3 monthsNo
8Spanish Tumour Bank NetworkSpainwww.cnio.es100–10002000ICD-10n/aPilot≤3 monthsNo
SIDIAPSpainn/a>50002005ICD-10n/aNo≤3 monthsNo
9National Cancer Intelligence Network (NCIN)UK-Englandwww.ncin.org.uk/home.aspx>50001971ICD-10n/aYes4-6 monthsYes
General Practice Research Database (GPRD)UK-Englandadmin{at}gprd.com>50001987Read Codesn/aYes≤3 monthsYes
10SCI-DC, ScotlandUK-Scotland1000–50002005ICD-10Read CodesPilot≤3 monthsYes
Health Informatics CentreUK-Scotlandn/a100–10001990ICD-10SNOMEDYes≤3 monthsYes