Table 1 The main theme and sub-themes generated by the interview data and their main coding categories
Main theme
Tightrope walking
Sub-theme
A culture of caution
Sub-theme
‘Fuzzy’ boundaries
Sub-theme
Cultivating the ground
Coding categoriesCoding categoriesCoding categoriesCoding categories
Public interestCollaborationTerminologyInnovations in secondary uses
Legal complexitiesIncremental stepsTypes of organisationData quality
Proportionate governanceData huggingConceptualDifferent models
PharmaEthicsWorkforce capacity
Who pays/gainsPrecision medicine
Relationships
Funding
Public engagement
Translational capacity