Description of target UK e-cohorts assessed for findability in direct and indirect searches
| E-cohort | URL | Responsible organisation | Description | Number of 2018 search results: direct (indirect) | Number of 2021 search results: direct (indirect) |
| Clinical Practice Research Datalink | https://www.cprd.com/ | MHRA (Medicines and Healthcare Regulatory Agency)/National Institute for Health Research | Primary care research dataset with linkage to additional datasets | Bing 9 (1) Google 1 (3) | Bing 14 (8) Google 13 (33) |
| The Health Improvement Network | https://www.cegedim-health-data.com/cegedim-health-data/thin-the-health-improvement-network | Cegedim* | Primary care research dataset | Bing 3 (0) Google 0 (4) | Bing 1 (2) Google 1 (13) |
| QResearch | https://www.qresearch.org/ | The University of Oxford; EMIS (Egton Medical Information Systems)* | Primary care research dataset | Bing 5 (0) Google 1 (4) | Bing 0 (3) Google 2 (15) |
| ResearchOne | http://www.researchone.org/ | TPP SystmOne* | Primary care research dataset | Bing 4 (0) Google 1 (1) | Bing 0 (1) Google 4 (6) |
| Consultations in Primary Care Archive | https://www.keele.ac.uk/mrr/cipcadatabase/ | Keele University | Primary care research dataset | Bing 0 (1) Google 0 (1) | Bing 0 (0) Google 0 (0) |
| Hospital Episode Statistics | https://digital.nhs.uk/data-and-information/data-tools-and-services/data-services/hospital-episode-statistics | National Health Service (NHS) Digital | Secondary care dataset | Bing 7 (3) Google 0 (4) | Bing 6 (3) Google 1 (8) |
| Salford Integrated Record | http://www.salfordccg.nhs.uk/download.cfm?doc=docm93jijm4n524.pdf&ver=680 | Salford Royal NHS Foundation Trust | Integrated primary and secondary care dataset | Bing 0 (0) Google 0 (1) | Bing 0 (0) Google 0 (0) |
| Prescribing Information System | https://www.ndc.scot.nhs.uk/National-Datasets/data.asp?SubID=102 | NHS Scotland | National prescribing dataset | Bing 0 (1) Google 0 (1) | Bing 0 (1) Google 0 (0) |
| SAIL databank | https://saildatabank.com | Swansea University; NHS Wales; Health and Care Research Wales | Linked health and other routinely collected datasets | Bing 4 (0) Google 1 (6) | Bing 1 (6) Google 3 (11) |
| NHS Lothian Research Safe Haven/The University of Edinburgh | https://www.accord.scot/researcher-access-research-data-nrs-safe-haven/safe-haven-network | NHS Lothian, University of Edinburgh, Edinburgh Napier University, Queen Margaret University | Service coordinating access to linked health datasets across the Lothian region, Scotland | Bing 0 (2) Google 1 (1) | Bing 0 (0) Google 0 (0) |
| Grampian Data Safe Haven | https://www.abdn.ac.uk/iahs/facilities/grampian-data-safe-haven.php | NHS Grampian and the University of Aberdeen | Service coordinating access to linked health datasets across the Grampian region, Scotland | Bing 0 (1) Google 1 (2) | Bing 0 (0) Google 0 (0) |
| Health Informatics Centre—Trusted Research Environment (University of Dundee) | https://www.dundee.ac.uk/hic/hicsafehaven | University of Dundee | Service coordinating access to linked health datasets across the Tayside region, Scotland | Bing 2 (1) Google 2 (1) | Bing 1 (0) Google 0 (0) |
| NHS Greater Glasgow and Clyde Safe Haven | https://www.nhsggc.org.uk/about-us/professional-support-sites/nhsggc-safe-haven | NHS Greater Glasgow and Clyde and the Robertson Centre for Biostatistics, University of Glasgow | Service coordinating access to linked health datasets across the Greater Glasgow and Clyde region, Scotland | Bing 2 (2) Google 1 (1) | Bing 0 (0) Google 0 (0) |
Most of the organisations are public sector.
*Commercial organisations.