Table 3

Catalogues of UK-based e-cohorts found through general internet search engines in 2018 and the number of target e-cohorts within them in 2018 and 2021

CatalogueWeb link (correct in March 2018 at the time of searching)Number of targets found (2018)Number of targets found (2021)
Health Data Finder for Researchhttp://www.hdf.nihr.ac.uk/2NA
Children and young people’s health data catalogue 2009http://www.childhealthresearch.eu/research/add-knowledge/Health/Data/Catalogue__2.pdf/at_download/file0NA
NHS Digital: Data and informationhttps://digital.nhs.uk/data-and-information/11
Perinatal mental health: national datasetshttps://www.gov.uk/government/publications/perinatal-mental-health-national-datasets (also linked to https://fingertips.phe.org.uk/profile-group/mental-health/profile/perinatal-mental-health)11
NHS England Data Cataloguehttps://data.england.nhs.uk/dataset11
National Data Catalogue Scotlandhttp://www.ndc.scot.nhs.uk/11
Asthma UK Data Cataloguehttps://www.aukcar.ac.uk/asthma-observatory/data-catalogue15
Urban Big Data Centre Health and social care datahttp://ubdc.ac.uk/data-services/data-catalogue/health-and-social-care-data/00
Social Services Improvement Agency Data Cataloguehttp://www.dataunitwales.gov.uk/SharedFiles/Download.aspx?pageid=30&mid=64&fileid=2200
  • Catalogues no longer accessible in 2021 are marked as NA.