Table 1

List of public sector organisations that took part in the surveys

RepositoryDescriptionURL
Health Data Finder for ResearchHealth data finder is a metadata catalogue aiming to inform potential users about health datasets that are available for use in researchwww.hdf.nihr.ac.uk
UK Data Service*The UK Data Service enables access to a range of datasets, primarily in the field of social and economic research; funded by the Economic and Social Research Council (ESRC)https://www.ukdataservice.ac.uk/
Consumer Data Research Centre (CDRC)*The CDRC enables access to routinely collected consumer data; funded by the ESRChttps://www.cdrc.ac.uk
Urban Big Data Centre (UBDC)*The UBDC enables access to urban-related data; funded by the ESRChttps://www.ubdc.ac.uk
Administrative Data Research Network (ADRN)*The ADRN was a service funded by the ESRC to enable secure access to datasetshttps://adrn.ac.uk
Electronic Data Research and Innovation Service (eDRIS)eDRIS is a service coordinating access to the national Scottish health datasetshttps://www.isdscotland.org/Products-and-Services/eDRIS
Health Informatics Centre—Trusted Research Environment (University of Dundee)A data safe haven run as part of the University of Dundee, affiliated with National Health Service (NHS) Tayside and NHS Fife; the service coordinates access to local health datasetshttps://www.dundee.ac.uk/hic/hicsafehaven
NHS Greater Glasgow and Clyde Safe HavenA data safe haven and data service coordinating access to local health datasetshttps://www.nhsggc.org.uk/about-us/professional-support-sites/nhsggc-safe-haven
CALIBER (University College London)A platform for sharing data and methodologies; linked primary care, secondary care (hospital admissions), mortality and cancer registry datahttps://www.ucl.ac.uk/health-informatics/caliber
Her Majesty’s Revenue and Customs (HMRC) Data Lab*A service providing secure access to deidentified HMRC datahttps://www.gov.uk/government/organisations/hm-revenue-customs/about/research%23the-hmrc-datalab
Connected Health Cities (CHC) North East and North CumbriaCHC is a programme in the North of England which aims to use local health data and technology to improve health services; North East and North Cumbria are developing infrastructure to connect local hospitals with their trustworthy research environment—this will include development of a metadata cataloguehttps://www.connectedhealthcities.org/connected-health-cities/cumbria-and-north-east-england
CHC Connected YorkshireConnected Yorkshire is based across Leeds, Sheffield and Bradford and works with the established Born in Bradford cohort; the dataset information described in this paper relates to the Born in Bradford studyhttps://www.connectedhealthcities.org/connected-health-cities/yorkshire-humber
  • *Not primarily health organisations.