Repository | Description | URL |
Health Data Finder for Research | Health data finder is a metadata catalogue aiming to inform potential users about health datasets that are available for use in research | www.hdf.nihr.ac.uk |
UK Data Service* | The UK Data Service enables access to a range of datasets, primarily in the field of social and economic research; funded by the Economic and Social Research Council (ESRC) | https://www.ukdataservice.ac.uk/ |
Consumer Data Research Centre (CDRC)* | The CDRC enables access to routinely collected consumer data; funded by the ESRC | https://www.cdrc.ac.uk |
Urban Big Data Centre (UBDC)* | The UBDC enables access to urban-related data; funded by the ESRC | https://www.ubdc.ac.uk |
Administrative Data Research Network (ADRN)* | The ADRN was a service funded by the ESRC to enable secure access to datasets | https://adrn.ac.uk |
Electronic Data Research and Innovation Service (eDRIS) | eDRIS is a service coordinating access to the national Scottish health datasets | https://www.isdscotland.org/Products-and-Services/eDRIS |
Health Informatics Centre—Trusted Research Environment (University of Dundee) | A data safe haven run as part of the University of Dundee, affiliated with National Health Service (NHS) Tayside and NHS Fife; the service coordinates access to local health datasets | https://www.dundee.ac.uk/hic/hicsafehaven |
NHS Greater Glasgow and Clyde Safe Haven | A data safe haven and data service coordinating access to local health datasets | https://www.nhsggc.org.uk/about-us/professional-support-sites/nhsggc-safe-haven |
CALIBER (University College London) | A platform for sharing data and methodologies; linked primary care, secondary care (hospital admissions), mortality and cancer registry data | https://www.ucl.ac.uk/health-informatics/caliber |
Her Majesty’s Revenue and Customs (HMRC) Data Lab* | A service providing secure access to deidentified HMRC data | https://www.gov.uk/government/organisations/hm-revenue-customs/about/research%23the-hmrc-datalab |
Connected Health Cities (CHC) North East and North Cumbria | CHC is a programme in the North of England which aims to use local health data and technology to improve health services; North East and North Cumbria are developing infrastructure to connect local hospitals with their trustworthy research environment—this will include development of a metadata catalogue | https://www.connectedhealthcities.org/connected-health-cities/cumbria-and-north-east-england |
CHC Connected Yorkshire | Connected Yorkshire is based across Leeds, Sheffield and Bradford and works with the established Born in Bradford cohort; the dataset information described in this paper relates to the Born in Bradford study | https://www.connectedhealthcities.org/connected-health-cities/yorkshire-humber |
*Not primarily health organisations.