Table 1

List of public sector organisations that took part in the surveys

Health Data Finder for ResearchHealth data finder is a metadata catalogue aiming to inform potential users about health datasets that are available for use in
UK Data Service*The UK Data Service enables access to a range of datasets, primarily in the field of social and economic research; funded by the Economic and Social Research Council (ESRC)
Consumer Data Research Centre (CDRC)*The CDRC enables access to routinely collected consumer data; funded by the ESRC
Urban Big Data Centre (UBDC)*The UBDC enables access to urban-related data; funded by the ESRC
Administrative Data Research Network (ADRN)*The ADRN was a service funded by the ESRC to enable secure access to datasets
Electronic Data Research and Innovation Service (eDRIS)eDRIS is a service coordinating access to the national Scottish health datasets
Health Informatics Centre—Trusted Research Environment (University of Dundee)A data safe haven run as part of the University of Dundee, affiliated with National Health Service (NHS) Tayside and NHS Fife; the service coordinates access to local health datasets
NHS Greater Glasgow and Clyde Safe HavenA data safe haven and data service coordinating access to local health datasets
CALIBER (University College London)A platform for sharing data and methodologies; linked primary care, secondary care (hospital admissions), mortality and cancer registry data
Her Majesty’s Revenue and Customs (HMRC) Data Lab*A service providing secure access to deidentified HMRC data
Connected Health Cities (CHC) North East and North CumbriaCHC is a programme in the North of England which aims to use local health data and technology to improve health services; North East and North Cumbria are developing infrastructure to connect local hospitals with their trustworthy research environment—this will include development of a metadata catalogue
CHC Connected YorkshireConnected Yorkshire is based across Leeds, Sheffield and Bradford and works with the established Born in Bradford cohort; the dataset information described in this paper relates to the Born in Bradford study
  • *Not primarily health organisations.