Name | Country | Subject areas | Update period | Description |
HES | UK | All healthcare | Daily (A&E is quarterly) | High-level, does not include physiological measurements outside of classifications in main diagnoses |
MIMIC | USA | Intensive care | Static | Deidentified data covering period '01–'12, in high detail |
WHO Global Health Observatory | Global | All healthcare | Variable | High-level count data, on a global scale, does not go to the level of individual patients |
Global Health Data Exchange | Global | All healthcare | Variable | Catalogue of existing datasets, generating novel data is outside of its scope |
NIHR Health Informatics Collaborative | UK | Thematic | Open only to member of the HIC for collaboration, does not provide a TRE | |
PIONEER | UK | Acute care including preceding and subsequent health contacts | On demand | Datasets tailored to specific use cases, updated on demand and available via a secure TRE. Individual patient level data that includes medications, physiological measurements, images over 20 years. Individually linked data from primary care, ambulance and secondary care. |
This should not be considered fully comprehensive, but highlights the differences between currently available datasets and PIONEER. HES=Hospital Episode Statistics.24 MIMIC Critical Care Dataset,25 Global Health Observatory,26 Global Health Data Exchange27 NIHR=National Institute for Health Research Health Informatics Collaborative.28
TRE, trusted research environment.