Table 1

Review of study phases, activities and stakeholders

PhaseActivity typeDescriptionStakeholders involved
Phase 1: capture experiences
  • Expert panel

  • Delphi prioritisation

  • Identify and prioritise core clinical concepts to include for feedback in focus groups

  • Recommend draft language for patient-centred pathology reports

  • Clinical experts (n=78)

  • Researchers (n=3)

  • Patient advisors (n=5)

Phase 2: understand experiences
  • Focus groups (n=4)

  • Understand patient experiences with pathology reports

  • Provide feedback on core concepts and draft language for patient-centred pathology reports

  • Patients (n=23)

Phase 3: design improvements
  • Integration of phase 1–2 data

  • Identification of design requirements

  • Draft patient-centred language for pathology report core clinical concepts

  • Generate consensus and translate recommendations into design requirements across cancer types

  • Clinical experts (n=6)

  • Patient advisors (n=5)

  • Researchers (n=3)

Phase 4: reflective evaluation
  • Reflective evaluation on co-design process

  • Iterative reflection on recommendations from expert panel and focus groups

  • Reflection on EBCD process

  • Clinical experts (n=6)

  • Patient advisors (n=5)

  • Researchers (n=3)

  • EBCD, experience-based co-design.