Table 7

Discussed person-generated health data (PGHD) utilisation effects on stroke survivors’ relationship with their care provider/s

Personal care goals
Relationship with care provider/sClinicians
  • After seeing her PGHD, the site 2 survivor was prompted to ask her therapist, to ask what she could do better.

  • Most site 1 survivors agree that PGHD could potentially prompt them to contact their clinician, especially if it is at odds to how they think they are performing.

  • Interestingly, if their PGHD is better than how they felt they did, it could potentially prompt them to tell their clinician that the results are not quite right.

  • For one survivor, seeing PGHD would not be the instigator of seeking more help.

  • There was also some interest with what happens to their PGHD, that is, what it is going to be used for.

  • Another survivor would be prompted to ask their therapist if they are making progress.

  • Clinicians agreed that stroke survivors would potentially be prompted to contact them if they did badly, to ask how they can improve.

  • Some clinicians also agreed that survivors would ask for more explanation about how the scores were calculated, and how their PGHD relates to their progress.

  • Some clinicians felt that if survivors know their PGHD, it might stimulate them to be more compliant as it promotes accountability, like doing homework.