TY - JOUR T1 - Mental health service users’ perceptions of data sharing and data protection: a short qualitative report JF - BMJ Health & Care Informatics SP - 239 LP - 242 DO - 10.14236/jhi.v25i4.1033 VL - 25 IS - 4 AU - Emily Satinsky AU - Corine Driessens AU - David Crepaz-Keay AU - Antonis A. Kousoulis Y1 - 2018/10/01 UR - http://informatics.bmj.com/content/25/4/239.abstract N2 - Background To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.Objective To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.Method We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.Results Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.Conclusion This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities. ER -