PT  - JOURNAL ARTICLE
AU  - Suzy Gallier
AU  - Gary Price
AU  - Hina Pandya
AU  - Gillian McCarmack
AU  - Chris James
AU  - Bob Ruane
AU  - Laura Forty
AU  - Benjamin L Crosby
AU  - Catherine Atkin
AU  - Ralph Evans
AU  - Kevin W Dunn
AU  - Eliot Marston
AU  - Clark Crawford
AU  - Martin Levermore
AU  - Shekha Modhwadia
AU  - John Attwood
AU  - Stephen Perks
AU  - Rima Doal
AU  - Georgios Gkoutos
AU  - Richard Dormer
AU  - Andy Rosser
AU  - Hilary Fanning
AU  - Elizabeth Sapey
TI  - Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper
AID  - 10.1136/bmjhci-2020-100294
DP  - 2021 Apr 01
TA  - BMJ Health & Care Informatics
PG  - e100294
VI  - 28
IP  - 1
4099  - http://informatics.bmj.com/content/28/1/e100294.short
4100  - http://informatics.bmj.com/content/28/1/e100294.full
SO  - BMJ Health Care Inform2021 Apr 01; 28
AB  - Introduction Health Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health data. These were used to inform the protocol.Methods This paper describes the PIONEER infrastructure and data access processes. PIONEER is a research database and analytical environment that links routinely collected health data across community, ambulance and hospital healthcare providers. PIONEER aims ultimately to improve patient health and care, by making health data discoverable and accessible for research by National Health Service, academic and commercial organisations. The PIONEER protocol incorporates principles identified in the public/patient workshops. This includes all data access requests being reviewed by the Data Trust Committee, a group of public citizens who advise on whether requests should be supported prior to licensed access.Ethics and dissemination East Midlands–Derby REC (20/EM/0158): Confidentiality Advisory Group (20/CAG/0084). www.PIONEERdatahub.co.uk