@article {Galliere100294, author = {Suzy Gallier and Gary Price and Hina Pandya and Gillian McCarmack and Chris James and Bob Ruane and Laura Forty and Benjamin L Crosby and Catherine Atkin and Ralph Evans and Kevin W Dunn and Eliot Marston and Clark Crawford and Martin Levermore and Shekha Modhwadia and John Attwood and Stephen Perks and Rima Doal and Georgios Gkoutos and Richard Dormer and Andy Rosser and Hilary Fanning and Elizabeth Sapey}, title = {Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper}, volume = {28}, number = {1}, elocation-id = {e100294}, year = {2021}, doi = {10.1136/bmjhci-2020-100294}, publisher = {BMJ Specialist Journals}, abstract = {Introduction Health Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health data. These were used to inform the protocol.Methods This paper describes the PIONEER infrastructure and data access processes. PIONEER is a research database and analytical environment that links routinely collected health data across community, ambulance and hospital healthcare providers. PIONEER aims ultimately to improve patient health and care, by making health data discoverable and accessible for research by National Health Service, academic and commercial organisations. The PIONEER protocol incorporates principles identified in the public/patient workshops. This includes all data access requests being reviewed by the Data Trust Committee, a group of public citizens who advise on whether requests should be supported prior to licensed access.Ethics and dissemination East Midlands{\textendash}Derby REC (20/EM/0158): Confidentiality Advisory Group (20/CAG/0084). www.PIONEERdatahub.co.uk}, URL = {https://informatics.bmj.com/content/28/1/e100294}, eprint = {https://informatics.bmj.com/content/28/1/e100294.full.pdf}, journal = {BMJ Health \& Care Informatics} }